As for being handicapped,I found that most people had made their places handicapped accessible, but not conveniently so; and a lot of places did not maintain them. I was repeatedly faced with a button to open a bathroom door that was very heavy that did not work. It was at the college where I was in a choir. Usually the parking for someone is handicapped is not close to the front door. I understand they have to put those long ramps there and that was where were the parking was at the end of the ramp not the front door. Also I find I have to use a quad cane to get to the shopping carts or electric cars inside. That is the most dangerous part of the trip for me. It would be nice if carts, etc., could be easily accessible from your car. Occasionally I flag someone down who has a cart or carts and ask them if I can have it for my trip inside.
People can be very helpful and sweet out in public, but sometimes in crowded places they don’t look where they are going and make quick turns. I am now at a stage where I could do without my cane if the place is not crowded and there are walls or furniture to hang on to if I need it. At home I do without; but I am challenged by open spaces and rough ground, roads, and sidewalks and especially in the dark. A lot of this stuff you don’t know until you are there. Stairs and slopes each have there pitfalls. I like to walk on a level surface and curbs and slopes challenge me. Long flights of stairs are scarey (and they need railings or banisters for safety), more so going down than up. Of course I use elevators, but they don’t always have them and I have not yet tried an escalator, but they have them in London if you want to use the underground. I’ve been there. That’s my story, don’t get me going I could talk for hours on this subject. Did you learn anything that you didn’t know?
A continuation of yesterday’s post. I also consulted in nursing homes for the disabled and for seniors who needed more care than they could get at home. I bet you could figure this one out. I wound up in a nursing home after a serious surgery because I wasn’t able to care for myself by myself and my husband had a weekend job that kept him away from home or sleeping most of every weekend and besides that he still had to work on the farm which was two miles from our house. I needed to be independent in all areas when I got home even with handicapped equipment. At home, after all of my surgeries I had home health, but they could come only for a short time and it didn’t last long. I found I had very kind and competent help on all of these occasions.. I had a good roommate the first time time and later the second time after more surgery, I spent two weeks on a rehabilitation unit. It is not fun to accomplish your personal tasks in front of everyone, but nearly everyone was at that stage especially when they first got there. Sometimes you have to be patient as the staff has other priorities and realize that it may have been you at another time. I did have family visitors, not so much at the rehab unit which was thirty five miles away.
If I am standing still or sitting down or driving a car or on the phone, you can’t tell if I am handicapped. My troubles started slowly and I was having problems for a long time before I went for my first surgery and they didn’t get resolved til my third surgery and I still have some residual nerve damage which effects the way I type, how large or small I write, whether I can hold on to something, how I walk, and other things. My family didn’t always understand; they were busy with their own lives. One of the biggest problems I had was dropping things. People would focus on the mess rather than helping me. They thought I was clumsy (and stupid), not that I couldn’t help it. Understandably at one point I got depressed. I have traveled by myself and shop and do almost all of the housework at home. I had to adjust. I don’t do something quickly or neatly, but I have found a way to do it on my own. It even effected the way I eat, but that is better now. Don’t expect miracles, but give it your best shot. It is easier to vegetate.
Boy, did I find out what it would be like to be handicapped. You see the world in a whole different way as a bunch of obstacles. In an evaluation with one surgeon, who had a medical student with him, asked my husband and son who came with me, not me, if I had any memory problems. The only clue the surgeon had was that I came with a walker. I didn’t dress goofy, my hair wasn’t gray (by the way I cheat) and I didn’t babble and I was as well educated as he was.
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